Hemophilia and War

In our struggles with insurance and access to treatment, we forget that some bleeding disorder patients in the world are struggling to survive war. I was moved by this account on Facebook. Sergiy Shemet is president of the Ukrainian Association for Hemophilia and Hemostasis, part of the Ukrainian Alliance for Hemophilia and Related Conditions (UAHARD).

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The Royal Disease

I’ve always been fascinated by history, especially Russian history, as it is so closely linked to hemophilia. Why? The last Tsar of Russia, Nicolas II, had a son with hemophilia. And it may have cost him the throne. That’s a whole history lesson, but you can read the short version of it in our book,

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