Hemophilia and War
In our struggles with insurance and access to treatment, we forget that some bleeding disorder patients in the world are struggling to survive war. I was moved by this account on Facebook. Sergiy Shemet is president of the Ukrainian Association for Hemophilia and Hemostasis, part of the Ukrainian Alliance for Hemophilia and Related Conditions (UAHARD).
The Royal Disease
I’ve always been fascinated by history, especially Russian history, as it is so closely linked to hemophilia. Why? The last Tsar of Russia, Nicolas II, had a son with hemophilia. And it may have cost him the throne. That’s a whole history lesson, but you can read the short version of it in our book,
SAVE ONE LIFE
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