
When We Ignored Mental Health
A long time ago—maybe too long for parents these days of young children with bleeding disorders but not long enough for those of us with kids born in the 1980s—mental health was not a big issue in our community. Were we healthier then? Have stronger families? Better character? No. We were entirely focused on survival.
Diagnosing the “Whites”
World Hemophilia Day, April 17, was celebrated globally on Friday! It’s a time when our community converges to give support, but even more importantly, to promote public awareness of the “royal disease” so that people can be diagnosed and appreciate the needs of those with bleeding disorders. In fact, the theme of this year is
SAVE ONE LIFE
Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!