Living With Hemophilia |
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Bayer HealthCare Quarterly. Electronic newsletter features expert advice; columns from hemophilia community members; practical tips for living with hemophilia. |
eNotes |
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National Hemophilia Foundation Monthly. Electronic newsletter informs the community on current medical breakthroughs, blood safety, advocacy updates, industry information, community news. |
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HemAware |
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National Hemophilia Foundation Bimonthly. Newsletter of largest US hemophilia nonprofit. Articles on bleeding disorder medical research and treatment; articles for families; reports on community events. |
Bloodstone Magazine |
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Accredo’s Hemophilia Health Services Semi-annual. Articles on living with hemophilia; profiles of families and people; Q&A and news. |
Factor Nine News |
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Coalition for Hemophilia B Quarterly. Brief newsletter features latest news and treatment for hemophilia B; community events. |
Dateline Federation |
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Hemophilia Federation of America (HFA) Quarterly. News magazine of second largest national hemophilia nonprofit. Healthcare information about bleeding disorders, government, healthcare events, innovative programs. |
COTT News |
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Committee of Ten Thousand (COTT) Quarterly. Information, reports, viewpoints about issues and events important to grassroots healthcare advocacy and support; focus on political and policy events in Washington, DC. |
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Quest |
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Coram Hemophilia Services Quarterly. Newsletter from home healthcare company for hemophilia patients features patient profiles, news, new products and services. |
Pfizer Lifelines |
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Pfizer Bimonthly. Information about hemophilia treatment; tips for living an active life; inspirational stories from people living with hemophilia; latest programs and services from Pfizer. |
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Post Script Informer |
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Patient Services, Inc. (PSI) Quarterly. Newsletter of nonprofit that helps people with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments. Up-to-date information on insurance changes for people with chronic disorders. |
Voices Uninhibited |
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Novo Nordisk Inc. Quarterly. First newsletter devoted solely to the inhibitor community that provides treatment information, events, patient stories, Q&A, new resources. |
Hemophilia World |
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World Federation of Hemophilia (WFH) Triannual. Articles on WFH activities and what hemophilia organizations around the world are doing to improve care. |
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The Source Magazine |
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Plasma Protein Therapeutics Association Quarterly. Information about the global plasma protein therapeutics industry. Includes interviews with key leaders; guest articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics. |
One Voice |
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Save One Life Quarterly. Newsletter of Save One Life, a nonprofit founded by Laurie Kelley, which provides individual child sponsorships to children with bleeding disorders in impoverished countries. |
TFY |
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Baxter BioScience Quarterly. Inspirational stories about families with hemophilia; product information from Baxter BioScience. |
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