Hemophilia |
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Michelle Raabe Scientifically detailed, colorfully illustrated, easy-to-read book focusing on the science behind the treatment, symptoms and genetics of hemophilia. Includes stories of hemophilia’s history; explanation of how various treatments are made, such as plasma-derived and recombinant; and how gene therapy might work. |
The Gift of Experience: Conversations About Hemophilia |
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Laura Gray, LICSW, and Christine Chamberlain, 2007 Compilation of personal stories from transcripts of 21 hemophilia patients, 40 and older, who are treated at BHC. Includes quotes from doctors, nurses, and a social worker who cared for patients for 40 years. Describes life with hemophilia during HIV and hepatitis C infections. Offers insightful testaments to optimism, determination, resilience. |
Dying in Vein: Blood, Deception...Justice |
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Kathy Steward MacKay and Stacy Milbouer Stirring photojournal of individuals and families with hemophilia affected by HIV and hepatitis. Portrays people who suffer, who become advocates, and who mourn loved ones. |
