Raising a Child With Hemophilia: A Practical Guide for Parents |
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Laureen A. Kelley, 2007
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
Fourth edition of the world's first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand information on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes stories and advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by CSL Behring: www.cslbehring.com |
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Raising a Child With Hemophilia in Latin America |
Download English Version
Download Spanish Version
Download Portuguese Version |
Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
English (PDF only), Spanish, Portuguese
Free to families and patients
First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications. Sponsored by Baxter BioScience: www.thereforyou.com |
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Success as a Hemophilia Leader |
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Laureen A. Kelley,
2004
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to qualified Hemophilia Leaders.
World's first guide to founding,
managing and growing a grassroots
hemophilia organization, or
improving an existing one. Valuable advice on
creating vision and mission, forming a board, fundraising,
producing a newsletter, programming, establishing an office,
working with a medical advisory board. Sponsored by
Talecris Biotherapeutics, Inc.: www.talecris.com |
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Teach Your Child About Hemophilia |

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Laureen A. Kelley, 2007
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
In-depth exploration of the way children
think and understand hemophilia
as they mature. Examines children?s
understanding of hemophilia concepts at
different ages: cuts, healing, blood,
severity levels, blood clotting, infusions,
genetic transmission. Fascinating look at the way children on
prophylaxis understand hemophilia. Prepares parents to
appropriately answer children?s questions and encourage
independence. Sponsored by CSL Behring: www.cslbehring.com |
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A Guide to Living With von Willebrand Disease |
Out of Print.
Available in 2010.
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Renée Paper, R.N., with Laureen A. Kelley, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
The world's first book on the world's most
commonly inherited bleeding disorder. Topics
include learning to cope with VWD, inheritance, the medical
system, treatment, women?s issues, health insurance.
Complete resource guide and real-life stories. Sponsored by
CSL Behring: www.cslbehring.com |
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Empower Yourself About Hemophilia |
Back order |
Laureen A. Kelley, 2004
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
For families of children newly diagnosed
with hemophilia. Includes goal-setting
methods and ways to change perceptions
of hemophilia to take charge of your life.
Before-and-after illustrations offer concrete
methods of regaining control during the rocky first year of
hemophilia. Sponsored by Grifols USA: www.grifolsusa.com |
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A Consumer's Guide to Hemophilia and von Willebrand Disease Products |
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LA Kelley Communications, Inc., 2007
www.kelleycom.com
Free to families and patients
Comparative, concise guide to all factor
concentrate and specialty products for
bleeding disorders. Designed for
consumers. Factor VIII, factor IX,
factor IX complex, inhibitor and
VWD products are color-coded and easy to
cross-reference. Binder can be inverted as a stand for flip-chart teaching.
Sponsored by Factor Support Network: www.factorsupport.com |
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Books for Children |
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My First Factor Words |
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Shannon Brush, 2009
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
The world?s first toddler book for children with
hemophilia reviews basic, one-word concepts in
a colorful, chunky book just right for small
hands. (ages 18 m?4 yr) Sponsored by Factor Support Network: www.factorsupport.com
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Just A Boy |
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Ziva Mann, 2009
Illustrations by Tatjana Mai-Wyss
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
A whimsical storybook for children ages 3-6 about an imaginative child with hemophilia who learns to control his pain as he transitions to needlesticks. Guided by loving suggestions from his mother, the boy tries different pain control techniques while imagining he is different things until he conquers his fears. Sponsored by Baxter BioScience: www.thereforyou.com
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What is Hemophilia? (Series) |
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Laureen A. Kelley, 1995
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to families and patients
Developmentally arranged series explains hemophilia to
children using language and concepts appropriate for three
age levels: preschool, school age, adolescent. Each book covers
the same topics in educationally and cognitively different
ways. Note to Parents for each age level. Sponsored by
CSL Behring: www.cslbehring.com |

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Level 1: Joshua, Knight of the Red Snake
Empowering story about preschooler with
hemophilia. Illustrated large-text format.
Ends on a note of joy and confidence.
(ages 3–7) |
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Level 2: They'll Probably Ask You "What is Hemophilia?"
Humorous story about Tony, who must
explain hemophilia to his fourth-grade
classmates. Includes glossary for children.
(ages 7–11) |
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Level 3: Tell Them the Facts!
Q&A book on hemophilia for
pre-adolescents and adolescents.
Material on genetics divided into
two sections: ages 11–14 and 14–16.
Also for teachers and parents of newly
diagnosed children. Includes glossary.
(ages 11–16) |
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Must You Always Be a Boy? |
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Laureen A. Kelley, 1991
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
Four illustrated rhyming tales explore adult
reactions to bleeds, overprotective parents, sibling
rivalry, classroom bullies. (ages 3–8) Sponsored by
CSL Behring: www.cslbehring.com |
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Alexis: The Prince Who Had Hemophilia |
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Laureen A. Kelley, 1992
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to families and patients
True story of Alexis, youngest child of Russian Tsar Nicholas
II, and how his hemophilia influenced events leading to the
Russian revolution. (age 8 and older) Sponsored by
CSL Behring: www.cslbehring.com |
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Factor Fun! |
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Diane Horbacz, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients
Illustrated activity book teaches about hemophilia, safety
and self-esteem with colorful mazes, matching, glyphs, counting.
Activities arranged by color-coded topic. (ages 4–7) |