Raising a Child With Hemophilia: A Practical Guide for Parents

Laureen A. Kelley, 2007
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

Fourth edition of the world's first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand information on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes stories and advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by CSL Behring: www.cslbehring.com

Raising a Child With Hemophilia in Latin America

Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
English (PDF only), Spanish, Portuguese
Free to families and patients

First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications. Sponsored by Baxter BioScience: www.thereforyou.com

Success as a Hemophilia Leader

Laureen A. Kelley, 2004
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to qualified Hemophilia Leaders.

World's first guide to founding, managing and growing a grassroots hemophilia organization, or improving an existing one. Valuable advice on creating vision and mission, forming a board, fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board. Sponsored by Talecris Biotherapeutics, Inc.: www.talecris.com

Teach Your Child About Hemophilia

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Laureen A. Kelley, 2007
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

In-depth exploration of the way children think and understand hemophilia as they mature. Examines children?s understanding of hemophilia concepts at different ages: cuts, healing, blood, severity levels, blood clotting, infusions, genetic transmission. Fascinating look at the way children on prophylaxis understand hemophilia. Prepares parents to appropriately answer children?s questions and encourage independence. Sponsored by CSL Behring: www.cslbehring.com

A Guide to Living With von Willebrand Disease

Renée Paper, R.N., with Laureen A. Kelley, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

The world's first book on the world's most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women?s issues, health insurance. Complete resource guide and real-life stories. Sponsored by CSL Behring: www.cslbehring.com

Empower Yourself About Hemophilia

Laureen A. Kelley, 2004
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

For families of children newly diagnosed with hemophilia. Includes goal-setting methods and ways to change perceptions of hemophilia to take charge of your life. Before-and-after illustrations offer concrete methods of regaining control during the rocky first year of hemophilia. Sponsored by Grifols USA: www.grifolsusa.com

A Consumer's Guide to Hemophilia and von Willebrand Disease Products

LA Kelley Communications, Inc., 2007
www.kelleycom.com
Free to families and patients

Comparative, concise guide to all factor concentrate and specialty products for bleeding disorders. Designed for consumers. Factor VIII, factor IX, factor IX complex, inhibitor and VWD products are color-coded and easy to cross-reference. Binder can be inverted as a stand for flip-chart teaching. Sponsored by Factor Support Network: www.factorsupport.com

Books for Children

My First Factor Words

Shannon Brush, 2009
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

The world?s first toddler book for children with hemophilia reviews basic, one-word concepts in a colorful, chunky book just right for small hands. (ages 18 m?4 yr) Sponsored by Factor Support Network: www.factorsupport.com

Just A Boy

Ziva Mann, 2009
Illustrations by Tatjana Mai-Wyss
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

A whimsical storybook for children ages 3-6 about an imaginative child with hemophilia who learns to control his pain as he transitions to needlesticks. Guided by loving suggestions from his mother, the boy tries different pain control techniques while imagining he is different things until he conquers his fears. Sponsored by Baxter BioScience: www.thereforyou.com

What is Hemophilia? (Series)

Laureen A. Kelley, 1995
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to families and patients

Developmentally arranged series explains hemophilia to children using language and concepts appropriate for three age levels: preschool, school age, adolescent. Each book covers
the same topics in educationally and cognitively different ways. Note to Parents for each age level. Sponsored by CSL Behring: www.cslbehring.com

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Level 1: Joshua, Knight of the Red Snake

Empowering story about preschooler with hemophilia. Illustrated large-text format. Ends on a note of joy and confidence.
(ages 3–7)

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Level 2: They'll Probably Ask You "What is Hemophilia?"

Humorous story about Tony, who must
explain hemophilia to his fourth-grade
classmates. Includes glossary for children.
(ages 7–11)

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Level 3: Tell Them the Facts!

Q&A book on hemophilia for
pre-adolescents and adolescents.
Material on genetics divided into
two sections: ages 11–14 and 14–16.
Also for teachers and parents of newly
diagnosed children. Includes glossary.
(ages 11–16)

Must You Always Be a Boy?

Laureen A. Kelley, 1991
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

Four illustrated rhyming tales explore adult reactions to bleeds, overprotective parents, sibling rivalry, classroom bullies. (ages 3–8) Sponsored by
CSL Behring: www.cslbehring.com

Alexis: The Prince Who Had Hemophilia

Laureen A. Kelley, 1992
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish
Free to families and patients

True story of Alexis, youngest child of Russian Tsar Nicholas II, and how his hemophilia influenced events leading to the Russian revolution. (age 8 and older) Sponsored by CSL Behring: www.cslbehring.com

Factor Fun!

Diane Horbacz, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patients

Illustrated activity book teaches about hemophilia, safety and self-esteem with colorful mazes, matching, glyphs, counting. Activities arranged by color-coded topic. (ages 4–7)