Living with Hemophilia (series) |
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Accredo’s Hemophilia Health Services, 2008 Age-specific educational booklets cover developmental events of different life stages: 0–12 months, 1–5 years, 6–11 years, 12–18 years, adult. |
An Educator’s Guide to Bleeding Disorders |
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Accredo’s Hemophilia Health Services, 2008 Gives educators a general overview of bleeding
disorders; answers common questions about recognizing
and responding to bleeds. Includes list of risk categories of
sports and activities; fill-in page for parents to note critical contact
information in the event of a bleed. |
A Coach’s Guide to Bleeding Disorders |
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Ruth Mulvany, MS, PT, 2008 For sports coaches, scout leaders, physical education teachers who supervise students with a bleeding disorder. Includes overview of bleeding disorders; guidelines for recognizing and responding to bleeds; list of risk categories of sports and activities. |
A Guide to Venous Access Devices |
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Accredo’s Hemophilia Health Services, 2008 Outlines types of venous access devices for people with hemophilia, highlighting major benefits and drawbacks. Co-sponsored by Bayer HealthCare: www.kogenatefs.com. |
Dental Care for Infants, Toddlers and Preschoolers with Bleeding Disorders |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Dental Care for Children and Teens with Bleeding Disorders: Ages 5 to 18 |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Dental Care for Adults with Bleeding Disorders |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Educational Support Brochures |
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Novo Nordisk Inc. Topics include introduction to inhibitors, surgery, traveling with inhibitors, ER visits, school teen issues, adult issues. |
Living with Hemophilia B |
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Pfizer Colorful, comprehensive overview of hemophilia B. Topics include genetic transmission, carrier testing, treatment, resources, bleed symptoms, joint care, physical activities, hemophilia as your child grows. |
B2B Speaking from Experience |
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Coalition for Hemophilia B, 2006 Colorful booklet for adults and teens shares personal experiences of factor IX deficient patients. User-friendly information for people already living successfully with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Speaking from Experience: A Guide for Mature Adults |
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Coalition for Hemophilia B, 2007 Provides helpful knowledge for making informed life decisions and remaining healthy today and in future. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Speaking from Experience: A Guide to the Preteen Passage |
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Coalition for Hemophilia B, 2009 Provides parents and caregivers of preteens with hemophilia B a “heads up” about the future from parents and caregivers who have raised preteens with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Perspectives on Hemophilia B in Early Childhood |
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Coalition for Hemophilia B, 2010 Tips from parents who have raised infants, toddlers, and preschoolers with hemophilia B; insight from medical professionals who treat children with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Know Your Numbers: Knowledge Is Power |
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Coalition for Hemophilia B, 2013 A publication that clearly discusses the importance of why you should know and understand specific sets of numbers when it comes to managing your own health care throughout your life. Sponsored by Pfizer: www.hemophiliavillage.com |
Hemophilia B: From Your Point of View |
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Coalition for Hemophilia B, 2010 Tips from peers with hemophilia B on dealing with challenges during adolescent and teen years. Sponsored by Pfizer: www.hemophiliavillage.com |
